Lately I’ve had a lot of highs …. not super high, but definitely higher than I need to be. At first I chalked it up to random highs. Then I thought it might be allergies trying to turn into something else (sinus infection, etc.) but then I’ve kept that at bay and haven’t gotten sick. Then it became my time of the month .. so I thought that might be it. But it’s been a couple of weeks now since they started creeping up. It’s time to go back to normal.
After 22+ years with this disease, I find myself still apprehensive changing my basal rates without consulting my CDE/Endo — why is that?? I feel stupid even admitting that. I guess even after all these years I’m still not 100% confident in my own management.
Last week, one evening I was in the high 200s at bedtime. I thought, “Well, I need to do a temp basal because this is getting ridiculous.” But I didn’t because my husband was traveling and even though I was wearing my CGM, I didn’t want to go too low overnight. Then I woke up in range-ish the next day so I thought I’d give it another day. Now here I am a couple of weeks into these crazy highs. I’ve changed sites, opened new vials of insulin. All that’s left is to increase my basals. Because they aren’t being touched by any other changes I’ve made.
The biggest thing I’ve noticed is I’m correcting highs at night and still waking up high. My CGM graph pretty much confirmed that.
So I’m going to bite the bullet and adjust my basals tonight. And hopefully I’ll wake up in range in the morning ;) Today I woke up 122 and the only thing I did differently last night was correct old school with a syringe, and changed my site. But then it’s creeped up all day since then.
Here’s to hoping tomorrow is a fresh start! :)
Happy New Year!!
So in January of 2014, I posted that I was going to save every test strip I used for the year. And I did. There were times that I had to dig around in my car or my floor to find one that I’d dropped, but I stuck with it (pun intended) and did it, and I’m proud to report that this picture accurately represents every time I poked my fingers in 2014. I opted to switch to the Mason jar mid year because that fish bowl was too big to have sitting out on my counter :)
I asked my six year old and my husband to guess how many strips they think are in this jar …. anyone else wanna guess? I’ll be counting them and posting the result after I get a few guesses. The small pile to the left of the jar is a stack of 10 strips, to use as a reference point.
2014 Test Strips
I’ve toyed around with the idea of getting a food scale for many years now but have honestly never had/used one. I’ve always believed in the usage of it .. but just never took the time to get one.
A good friend of mine got me one for my birthday this month (shout out, Suzanne!) and I’ve been playing around with it. The biggest thing I’ve noticed is I’m not nearly good at SWAG’ing as I thought I was! Especially when it comes to bananas.
I’ve always counted a banana as 15-20 carbs. If it was a smallish banana, I counted 15, and if it was biggish, it was 20. Boy, was I wrong. Did you know most of those bad boys are 40ish carbs?? I sure didn’t. The first time I weighed one last week and it said 41 carbs, I about fell over. And to be honest, I was hesitant to actually bolus for that many carbs because I’d been eating that same size for .. well, ever, and surely I’d have noticed that I was high afterwards? Or maybe not. [Insert plug here for why logging/wearing a CGM is so helpful in managing diabetes.]
So bottom line is I’d been underestimating my carbs big time .. which in layman terms means I’ve been taking about 1/2 the amount of insulin I’d needed to cover a meal. To those of you non-diabetics reading this … I have to account for every.single.carb I put in my mouth, whether it’s a cup of coffee w/ milk or creamer, or a piece of fruit, or a slice of pizza. That factors into how much insulin my pump gives me. So it’s imperative that I get as accurate as possible. A lot of times it’s a gamble and a guessing game. But I do try to get as close as possible.
And I’m not going to lie and say I don’t ask my husband or even my six year old to help me add up carbs in my meals. There’s a reason I wasn’t a math major. haha #truestory
I’m not really sure how to respond to this ….
I have a friend that works in a daycare.. She had a new child (10 mos old) start in her class a couple of weeks ago, and when the mom came in the week before to finalize everything and give instructions, etc., the mom mentioned she was T1 and she does not give her son any carbs, including rice cereal, because she does not want him to get diabetes like she did.
Granted, I do not know anything about this mom. I’ve never met her.. But my friend asked me if there was anything she could say to her (because my friend knew enough to know that was not necessarily accurate.) I told her that it is certainly the mom’s prerogative on whether or not to feed her child carbs. But that IMO it does not matter whether or not she gives him carbs – that will not determine whether or not he becomes diabetic. She could not give him carbs and he could still get it one day. My 16 years of being able to go trick-or-treating before my dx, is not the reason I found out I was diabetic at the age of 17.
I get that so many people are still incredibly ignorant (meaning just NOT knowledgeable) when it comes to diabetes. But this one kind of surprised me.
So I’m meeting with my new CDE this week on Wednesday. I honestly cannot remember the last time I met with a CDE. I had one when I was first dx’d – she always stuck out to me because she was also a Type 1.
I’ve been keeping an old school log for the past two weeks. Have been having site issues with my pump, so I haven’t worn my CGM. Wondering what else to go in with? Not even sure what questions to ask her?
Sad that I’ve been T1 for almost 22 years and I feel like a brand new patient going into this appointment. Part of me wants to go in with a clean slate – show her my info and say let’s start from scratch. I’ve been managing this on my own for over a decade, for the most part, and have never had a “team”.
Anyone have any words of wisdom or suggestions to better prepare me for Wednesday? :)
Thanks in advance, y’all!
My 6 yr old son is extremely perceptive. He has always known mommy has diabetes, even if he can’t fully grasp what that means. But if we see/hear diabetes on anything he always points it out.
Lately he’s started asking more questions. He’ll ask why do I have diabetes. And will ask if I wished I didn’t have it. And will he or his brothers have it. Or he’ll say HE wishes I didn’t have it.
I just tell him that I’d obviously rather not have it, but that it’s ok that I do. And my husband chimed in on the conversation the other day and said “Mommy wishes she didn’t have it, but she’s been able to help a lot of people that she wouldn’t have known, if she didn’t have diabetes.” Wow. That right there is one of the #1 reasons I started blogging in the first place. But even before blogging, I was very active in my local JDRF chapter, and I was a Mentor and just wanted to spread the word. To try to change the myths so many people had and still have about this disease.
And the other day I pulled into Sonic to grab something for my son to eat for dinner as a treat, and I was undecided on whether or not I wanted to eat or wait till I got home. He finally asked why I hadn’t ordered yet.. I said “I am just trying to decide if I’m going to eat or not.”
He leaned up and put his 6 yr old little hand on my shoulder and said, “Mommy, it’s very important that you eat because of your diabetes. So I think you should eat dinner.” I almost cried. I explained that I would in fact EAT.. I just didn’t know if I wanted to eat at Sonic. :)
I heart him so much.
I’ve been active in my local JDRF chapter for over 20 years …. For the first several years, I went as a walk participant on my mom’s company’s team. And then about 10 years ago I signed up to work on the Logistics team that helps to plan the walk. I started out on the Food Committee and helped organize food for the event. Then I became the Food Chair. Then I was asked to Co-Chair the walk about 6 yrs ago, and I did that up until last year.
We have always had a kickoff event around this time of year – it started out being a really fun dinner/party that was intended to get everyone pumped up for the walk and get excited about fundraising and attending the walk. There were door prizes and giveaways (one year I won a tv!) and I always left there with my chest puffed out a little with pride. And super pumped (pun intended) about reaching out to my family/friends that have supported me all of these years to ask, yet again, for donations.
Then a couple of years ago, with a new regime and lower budget, it was cut way back and fewer people attended and it just wasn’t the same. But I still went. Because I was still the co-chair and the walk has always been VERY important to me.
This year I had not heard anything about a kickoff event. So I emailed my local chapter and I received what appeared to be a form letter of such. Telling me that they’re happy I’m “back” this year (was I gone?) and that this year we are part of a pilot group that is changing the name of the walk from “JDRF Walk to Cure Diabetes” to “JDRF One Walk”. Also, there will be no kickoff event. And no awards event (which we’ve always had, as well. This is where I’ve received all my awards from years past.)
I’m not sure how I feel about that …. Granted I’m just one person. But I’m one person that has been VERY involved in my chapter for over two decades. I’ve helped plan the walk for a decade. And I’m fine with taking a step back to attend the walk with my family again. I’ve actually looked forward to that. My six year old gets excited about going every year. And I hope my twins look forward to it as they get older, too. But I’ll miss the “small” stuff. Like the kickoff, and the awards banquet. I am not sure yet what to expect this year, and I’ll certainly going into it with an open mind … but I am not sure it’s the right thing to do to cut out so much of the stuff that we are used to from years’ past. We’ve made a lot of changes recently – in the last 3 years alone we’ve changed the location, the regime at the local corporate office, downscaled the events, etc.
I’m hoping that this year will be better than ever. It’ll just be different. And sometimes change can be good. :)