Change is (going to be) good

For those of you that have followed my blog for awhile, you know that I have been talking about needing to find a new Endo .. but that I haven’t yet done it. For no reason other than I like some of the office staff my dr has. But the main person I like is now in the front office (used to be his nurse) and she’s about to go on maternity leave. And I like that it’s a small office – so I always can talk to a person (only 5 people work there, including the dr).

But there have been many reasons I’ve needed to switch for a long time now. As in for YEARS I’ve needed to switch. I’ve basically managed my own diabetes for the past 12ish years.. he just writes my Rx’s. (I know.. I know … ) But now he’s not even doing that well, so I think this most recent issue has become the straw that’s breaking the proverbial camel’s back.

When I last saw him in March, I had recently made some changes to my diet – I had started using HerbaLife and it was doing great things for me (still am using it, but that’s not the point .. ) He’d always written my Humalog Rx’s for 100 units per day. I usually took 75-80, and this gave me a cushion for “off” days. I mentioned during this appt that since starting the shakes, I was down to taking 50-60 units per day. But I also mentioned that I’d just recently made these changes (meaning- I hope this good luck streak continues, but who knows.)

I get to the pharmacy to drop off my Rx and that’s when I noticed he’d written the Rx for FIFTY units/per day.. Huh?? Why on earth would you do that? We did not talk about decreasing the Rx. So instead of dropping it off, I called the dr’s office to have them change it before I drop it off. When I called, he agreed to up it to 75…. what?? It’s ALWAYS been 100u. Why are you messing with my LIFE SUPPORT???? *sigh* But I was running low on my supply at home, and I was still averaging 50-60u/day so I turned in the 75u Rx.

Fast forward almost 3 months and I’m getting ready for my next appt. Except that I’m now on my last vial. I’d had a stomach bug and just lots of “off” days … which resulted in me going through that insulin faster than he apparently anticipated. *sigh*

So I called the office to see if I can pick up a new Rx – my appt is scheduled for June 9th, can I go ahead and get a new one .. BUT I need this one written for the 100u like it’s ALWAYS been. (I still have no idea why he’d cut it in HALF without talking to me about it … but whatever) And get this ….. his compromise was he’d call in two vials to get me through till my appt and THEN he’ll write a new Rx for 9 more vials at my appt …. huh??? I’m not sure if he was worried I wasn’t going to come in for my appt or what … But this one did me in. You can’t jack around with my INSULIN … it’s the ONLY Rx I take that I canNOT go without ….

So I’ve been calling around to a couple of local Endos. They are in bigger practices, so I won’t get the one on one treatment that I’ve grown accustomed to. BUT I have to believe that there are actual dr’s that will manage this disease with/for me .. and not leave me out here doing it alone. It’d be interesting to go to one that has a CDE, also. I haven’t seen one of those since my Dx in ’92!

Wish me luck … I’m not a fan of change. But I’m going to go through with it this time …. And I expect y’all to hold me to it. 😉 Stay tuned ….

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About Shannon

I am a wife, a mommy, and a Type 1 diabetic (since '92.) I have had two successful pregnancies - one of which was with twins. I wear an insulin pump- - off and on for 17 years; currently on the Medtronic pump and CGM. I am not a medical professional, nor am I giving medical advice. I am just sharing my day to day stories of someone who lives with this disease every day. My ultimate goal is to raise awareness.
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4 Responses to Change is (going to be) good

  1. StephenS says:

    Good luck Shannon. For what it’s worth, my endo is in a big practice, and she’s fantastic. Though I haven’t seen a CDE since my diagnosis either. I don’t know if that means I’m doing okay, or it means I’m missing out. I wish you all the best in your search. I know you’ll be glad you made the change.

  2. Scott E says:

    Good luck! I’m interested to see how this turns out. (As for your comment on finding doctors to manage this “with/for” me, you may find a “with”, but good luck finding a “for”!)

  3. Soonds like you’re to the point where the pain of staying the same is greater than the pain of change

  4. Karen says:

    I think it’s great that you are taking this leap!! Best of luck – I know this WILL be a great change!

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